The Cluster Headache Competence Center at the Kiel Pain Clinic and the Federal Association of Cluster Headache Self-Help Groups (CSG) eV a conference entitled Cluster Headache Baltic Sea Conference on August 10th and 11th, 2012 at the Kiel Pain Clinic, Heikendorfer Weg 9-27, 24149 Kiel, as part of the 3rd Kiel Cluster Headache Days.
Cluster Headache Academy 2012
The event, which included experts and patients affected by cluster headaches, their relatives, and doctors, provided an opportunity to exchange and discuss past experiences, current developments, and future visions for the modern care of cluster headaches and paroxysmal hemicrania.
This year's focus was on current neurostimulation procedures and their comparison with conventional treatment. These procedures were discussed from the perspective of both patients treated with these methods and specialists. Patients and interested physicians were to be informed firsthand about the new treatment methods for CKS/TAK so they could form their own opinions. The event was organized as a patient academy. A specialist would first explain the methods. Then, patients who had been treated would share their individual experiences. This was followed by a panel discussion on each presented method.
Press review:
Kieler Nachrichten, August 11, 2012;
NDR Schleswig-Holstein-Magazin, August 11, 2012;
NDR Schleswig-Holstein-Magazin Interview, August 11, 2012;
NDR Television, August 11, 2012;
SAT1 Hamburg-Schleswig-Holstein;
ARD Midday Magazine
program
Location: Pain Clinic Kiel, Heikendorfer Weg 9-27, 24149 Kiel
Date: Friday, August 10, 2012 & Saturday, August 11, 2012
Day 1, Friday, August 10, 2012
| Time | Theme | Speaker |
| 15:00 | Welcome, concept of the event, greetings | Greetings from: Ulla Schmidt (former Federal Minister of Health), Dr. Johann Brunkhorst (TK Schleswig-Holstein), Dr. Müller-Lucks (Ministry of Health Schleswig-Holstein) |
| 5:30 | CKS, causes, conventional therapies | Prof. Dr. H. Göbel |
| 16:15 | Questions about the presentation | |
| 16:30 | pause | |
| 16:45 | CKS, unusual conditions | Dr. H. Müller |
| 17:30 | Questions about the presentation | |
| 17:45 | pause | |
| 18:00 | Psychosocial impairment and well-being in cluster headache | J. Röhl |
| 18:30 | RTL film | |
| 18:45 | CKS and the soul – the psychological side of coping with illness | Prof. Dr. M. Keidel |
| 19:15 | Questions about the presentation | |
| 19:30 | End of Day 1 | |
| 20:00 | Dinner: Please register by email to Ms. Fromm |
Day 2, Saturday, August 11, 2012
| Time | Theme | patient | Speaker |
| 10:00 | Welcome and explanation of the agenda |
JC Terhaag H. Duwenkamp |
|
| 10:15 | Deep Brain Stimulation (DBS) | NN | Dr. H. Kaube |
| 11:00 | Questions | ||
| 11:15 | pause | ||
| 11:30 | Spinal Cord Stimulation (SCS) | NN | Dr. H. Kaube |
| 12:15 | Questions | ||
| 13:00 | Lunch: Please register by email to Ms. Fromm |
||
| 14:00 | GPP-S and GPP-I radio frequency modulation | NN | Dr. H. Kaube |
| 14.:45 | Questions | ||
| 15:00 | pause | ||
| 15:15 | ONI and ONS | NN | Prof. Dr. Dr. S. Evers |
| 16:00 | Questions | ||
| 16:15 | pause | ||
| 16:30 | Summary, concluding discussion | All | All speakers JC Terhaag H. Duwenkamp |
Explanations
- CKS Cluster Headache Syndrome
- TAK trigeminal autonomic headache disorders
- DBS Deep Brain Stimulation
- SCS Spinal Cord Stimulation
- ONI Occipital nerve infiltration
- ONS Occipital Nerve Stimulation
- GPP-I pterygopalatine ganglion infiltration
- GPP-S pterygopalatine ganglion stimulation
Directions: https://schmerzklinik.de/anreise
Information about cluster headaches: https://schmerzklinik.de/clusterkopfschmerz
Downloadable and printable program [/fusion_builder_column][/fusion_builder_row][/fusion_builder_container]
Dear Professor Göbel,
I am very pleased to have participated in this interesting and important event. Thank you for your dedication to this rare type of headache and for helping those affected to receive increasingly effective and sustainable care.
I would like to briefly describe how the two days of the cluster headache academy went.
The event was well attended, with, I would estimate, at least 100 people. Many traveled from all over Germany; I found this level of commitment very impressive.
Prof. Göbel opened the event as host, followed by greetings from the Parliamentary State Secretary in the Federal Ministry of Health, Ms. Annette Widmann-Mautz, and the former Federal Minister of Health, Ms. Ulla Schmidt.
Dr. Brunkhorst, the head of the Techniker Krankenkasse Schleswig-Holstein, was also present and praised the initiative of the Kiel Pain Clinic.
The lectures were started by Prof. Göbel with a general explanation of the disease cluster headaches, the currently common conservative treatment options and the developments of recent times.
Dr. Müller, President of the CSG, reported on the current state of treatment for pregnant women, children, and the elderly, some of whom fall almost completely through the cracks. The professional societies of gynecologists, pediatricians, and geriatricians, unfortunately, sometimes showed little willingness to establish guideline-compliant treatment for cluster headache patients. The blunt rejection by one of the professional societies greatly outraged Dr. Müller and those present, whereupon Prof. Göbel immediately offered to draft an official letter.
A student affected by cluster headaches, in her bachelor's thesis, like Professor Keidel, pointed out the completely neglected aspect of the psychosocial component in cluster headache sufferers. People affected by the most severe pain conditions imaginable are usually not offered psychological support, nor are their relatives. These therapeutic options should be urgently included in the treatment guidelines of the German Cluster Headache Society (DMKG) and the German Cluster Headache Society (DNG), a demand that is entirely justified. Professor Göbel spontaneously pledged his support for this as well.
The second day began with a minute of silence in memory of Prof. Dieter Soyka, the pioneering headache researcher who passed away last year.
Dr. Müller-Luchs from the Schleswig-Holstein Ministry of Health personally read the ministry's greetings.
Dr. Kaube presented earlier surgical procedures such as DBS (deep brain stimulation) and current procedures such as spinal cord stimulation (SCS), ATI neurostimulation and pulsed radiofrequency therapy at the sphenopalatine ganglion.
Following this, Prof. Evers presented procedures such as ONI and ONS (infiltration and stimulation of the occipital nerve).
Patients who had already undergone surgery shared their experiences. Questions were open after each presentation, and this opportunity was very well received. There were particularly critical comments regarding the surgical procedures. One patient present, who had undergone unsuccessful surgery, reminded us of the then-fashionable deep brain stimulation treatment for cluster headache patients. This method is now considered definitively unsuccessful, and it remains to be seen to what extent the newer procedures will be successful in benefiting patients.
During breaks, artworks by those affected could be admired, which were displayed in the corridors of the clinic.
The CSG is planning a similar event next year in the south.
All participants were thrilled and delighted by the dedication shown in trying to spread more knowledge and information about this most severe pain disease.
Warm greetings from Munich,
Bettina Frank
Dear Professor Göbel,
Many of the participants assured me that it was a fantastic event. Besides the numerous people affected by the condition who were present, I know of a father who accompanied his adult son, as well as an adult daughter who accompanied her mother. They both wanted to learn more about the son's/mother's condition and now face future attacks with much greater peace of mind. The father said: "Now I can reassure my mother too. It was important and good that I came" (from near Mönchengladbach).
On behalf of the many who are now reassured, as well as on behalf of all those who were able to learn and expand their knowledge at this event, I thank you for once again helping CSG eV so tirelessly, competently and in a friendly manner.
Best regards
Jakob C. Terhaag
I'll be there on August 1st and would like to present a patient. Should I bring the patient with me (he's participating) or just present him based on his medical records? Thanks for a quick reply! Francis
[…] Event announcement: Cluster headache academy at the Kiel Pain Clinic on August 10th and 11th, 2012 […]
We are traveling from the Bavarian Forest. I have already been to your clinic twice and would now like to learn about the latest developments, especially the new treatment methods, and form my own opinion. Regina Meyer
We will be attending this interesting event on both days