The nominations for the achse-central Prize 2014 have been announced. Among them is the joint project “Nationwide network against trigemino-autonomous cephalgia” by the Federal Association of Cluster Headache Self-Help Groups (CSG) eV, the Kiel Pain Clinic and the Techniker Krankenkasse. It is one of four nominated projects that were selected from around 20 applications.

For the 4th time in a row, ACHSE and Central Krankenversicherung AG are offering a prize that honors existing projects that use an innovative approach to care for people with rare diseases. But what does an “innovative approach” mean? People with rare diseases face very special challenges: They are usually permanently dependent on medical help and other therapeutic support and usually require interdisciplinary treatment and psychosocial support. However, the German healthcare system is not adequately equipped to care for people with these complex illnesses. “There is a lack of coordinated forms of cooperation and comprehensive concepts that ensure that those affected receive expert and, if necessary, interdisciplinary and cross-sector care,” says Mirjam Mann, Managing Director of ACHSE.

By awarding the prize, ACHSE and Central Krankenversicherung have jointly set themselves the goal of counteracting this lack of care for people with chronic rare diseases: The projects are to be promoted, communicated and multiplied. In the last few weeks, the jury for the achse-central Prize has nominated four projects from a total of 20 applications. These correspond particularly to the aim of the prize: to improve the care situation for people with rare diseases. The winning project will be announced in May. With the achse-central Prize, ACHSE (Allianz of Chronic Rare Diseases) and Central Krankenversicherung AG are jointly committed to improving the treatment and care of people with a rare disease. The prize is being awarded for the fourth time this year and is aimed at companies, institutions, organizations and also individuals from all areas of the healthcare sector. It is supported by the Generali Future Fund and is endowed with 10,000 euros.

The “Nationwide network against trigemino-autonomic cephalgia (TAC)” project aims to diagnose and treat trigemino-autonomic headaches A total of 363 main headache diagnoses are classified today. This also includes a number of very rare headache disorders - including the group of trigemino-autonomic cephalgias (TAC), which also includes cluster headaches. They all cause severe, one-sided headache attacks. The rapid diagnosis of TACs is particularly important because their treatment is fundamentally different from the treatment of other forms of headache. However, on average it takes eight to twelve years for a patient to receive an adequate diagnosis and specific treatment. The Federal Association of Cluster Headache Self-Help Groups (CSG) eV has developed an integrated care concept in collaboration with the Techniker Krankenkasse (TK) and the Kiel Pain Clinic. This is based on a nationwide diagnosis, treatment and research network with competence centers and coordinated treatment paths. In this way, patients should be spared treatment odysseys, diagnostic delays and ineffective therapies.

“The project convinced the jury of the achse-central Prize because it is networked nationwide and the treatment paths are coordinated and coordinated. In addition, the concept was developed together with self-help and with the support of strong cooperation partners. It is interdisciplinary and takes into account the psychological and social concerns of those affected,” explains jury leader Dr. Arpad von Moers, chief physician of the children's clinic at the DRK Kliniken Berlin, received the nomination.

Further details at http://www.achse-online.de/

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